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Hello I’m Fairly New To All This And My Derm Has Me On Dupixent, But No Longer On Any Steroid Creams…. I’m Still Getting New Nodules. Does
How Many Believe Some Vaccines Caused Your Pn And/or Heredity Played A Part Into Their Skin Issues Or Even Both?
I fully believe mine was a result of the ineffective Zostavax for Shingles, & my mom had some skin issues which 1 was Psoriasis. I believe mine was the ineffective vaccine as it was given after the beginning stages of my Shingles on my left lower back 16 yrs ago. Then almost 1 month to the date of vaccine I experienced the most horrible mosquito bite ever & told by the Derma who administered it barely looked at it & blurted out Eczema which the so-called Eczema spread. When I broke out… read more
Oh, good to hear on your vaccines Cathy924! Sorry you have other debilitating health issues to deal with. I too TRY not to dwell on the negatives, but it is one of the toughest journeys I have… read more
Has Anyone Else Gotten Eczema After Using Nemluvio? How Are You Treating The Eczema?
Although I had high hopes for Nemluvio, it didn't work for me. Unfortunately, after taking my starter dose and first regular dose of Nemluvio, I now have eczema spots on my body (and itching). I have stopped using the drug. Now, I am trying to figure out how to get rid of the dry eczema spots on my body. Has anyone else experienced this? If so, what are you using to treat your eczema?
Mine has 're-invented' after healing, then can itch, as well as if it has the white bumps underneath
I now have a new 'thing' that I'm not sure is excema or psoriasis, idk, but it is kind of like an… read more
Has Anyone Been Diagnosed With Seborrheic Dermatitis On Their Scalp Besides The PN And LSC
PauletteJJones.......Thank you, thank you from the bottom of my ❤️ as your tip on the "As I Am" Cowash is the best ever I have used on my diseased scalp!! Seriously, after 16 years of torture it… read more
What’s One Thing About Prurigo Nodularis That People Rarely Discuss But Should?
From your picture, you are very attractive. No way should you feel inadequate, but I understand. How bout in your nose, ears and upper back? Well, I'm not letting this get me down
Life is way to… read more
Does Anyone Else Get Other Symptoms Like Hot Flushes, Excessive Sweating And Body Aches As Well As Itchy Nodules?
Yes
How Do I Tell The Difference Between Prurigo And Peripheral Arterial Disease?
Hey @A MyPrurigoTeam Member! Here's a great article that talks about the causes although it's widely unknown. https://www.myprurigoteam.com/resources/what-ca...
How Can I Tell The Difference Between Prurigo And Peripheral Arterial Disease?
To differentiate between prurigo nodularis (PN) and peripheral arterial disease (PAD), it's important to understand their distinct characteristics:
Prurigo Nodularis (PN)
- Symptoms:
- Intense… read more
Does Everyone Know That The Makers Of Nemluvio WANT You To Have Access To It? I Am Taking It At No Cost For Two Years! Call Your Doctor!
I want to encourage everyone to tell your doctor that you want to try Nemluvio. My insurance won’t cover it because it is so new but they want it made available to PN sufferers
It is insanely expensive — more than $8600 where I get prescriptions. BUT, they did the paperwork at my doctor’s office and I am going to be able to take it for two years at NO charge
It is a monthly injection. I did my second one today. They send it in the mail.
My skin is not clear but it’s better!
Call… read more
Richard2
Hello
I'm Mary Lou in Toronto 🍁
Yes this nasty PN is a trial & error process unfortunately Like whack a mole game the doctors try 2 hit the nodules etc with one medication- cream pills or… read more
Just Wanted To Know L Have This Condition For 16 Years Got Diagnosed With Biopsy What L Can't Understand Is Mine Never Did Have Itch
I did not have itching for 2 years or so but I now have some lesions that really itch. Of course this is the cause of the itch, scratch cycle they use to make us believe this is the reason for this… read more
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