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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Prurigo Nodularis Symptom Surprised You The Most?

By A MyPrurigoTeam Member 47 answers
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Would You Like To Meet On Zoom As A Group?

By A MyPrurigoTeam Member 73 answers
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Has Anyone Ever Been Told Why This Stinging? I Can Be Just Sitting And Zing.

By A MyPrurigoTeam Member 28 answers
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How Do Beverages With Caffeine Affect Your Prurigo Nodularis?

By A MyPrurigoTeam Member 35 answers
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901 questions

Day Two After My Shot. Should I Continue With Cream's Too ?

A MyPrurigoTeam Member asked a question 💭
48067
A MyPrurigoTeam Member

Exactly - if still having nodules, lesions, rash, to continue with topical as needed. Prescribing Dr office should have info on this if you're not sure.

3 days ago

I Just Had My First Shots. What Can I Expect Now ?

A MyPrurigoTeam Member asked a question 💭
48067
A MyPrurigoTeam Member

I didn’t really notice anything after the first shots. After about the 6th I noticed some improvement in the discomfort but not the nodules. It was pretty short lived for me. But it sure helps… read more

3 days ago (edited)

What Do You Use For Itchy Spots On Your Scalp?

A MyPrurigoTeam Member asked a question 💭
Greenback, TN
A MyPrurigoTeam Member

That's the one!!!

3 days ago

Anyone On Dupixent? How Do I Know It Is Working

A MyPrurigoTeam Member asked a question 💭
A MyPrurigoTeam Member

Hope you find what works for you… been on dupixent for a year and a half and so far … it’s working … no real side effects besides the weight gain where I inject myself so started doing it on my butt…… read more

January 7

Has Anyone Had Good Results From Taking Dupixant For Eczema?

A MyPrurigoTeam Member asked a question 💭
Orlando, FL
A MyPrurigoTeam Member

I took Dupixent for PN and it cleared my PN up. Now I haven't had any Dupixent since November and I have about 10 -12 lesions on my scalp
Dupixent helped me and I'm currently trying to get back on… read more

1 day ago

What Advice Are You Grateful To Share With Others About Prurigo Nodularis?

A MyPrurigoTeam Member asked a question 💭
San Francisco, CA
A MyPrurigoTeam Member

I am grateful for finding this group. Great source of advice, information experiences and support. I feel safe here... safe enough to share one of my poems, for the first time in my life!

Happy… read more

December 24, 2024

Hello I’m Fairly New To All This And My Derm Has Me On Dupixent, But No Longer On Any Steroid Creams…. I’m Still Getting New Nodules. Does

A MyPrurigoTeam Member asked a question 💭
London, KY
A MyPrurigoTeam Member

There is a nationwide issue with health care. Some of the speciality practices have been adversely affected by it. That leads to longer wait time for appointments. In addition to the shortage of… read more

1 day ago

How Many Believe Some Vaccines Caused Your Pn And/or Heredity Played A Part Into Their Skin Issues Or Even Both?

A MyPrurigoTeam Member asked a question 💭
Tooele, UT

I fully believe mine was a result of the ineffective Zostavax for Shingles, & my mom had some skin issues which 1 was Psoriasis. I believe mine was the ineffective vaccine as it was given after the beginning stages of my Shingles on my left lower back 16 yrs ago. Then almost 1 month to the date of vaccine I experienced the most horrible mosquito bite ever & told by the Derma who administered it barely looked at it & blurted out Eczema which the so-called Eczema spread. When I broke out… read more

A MyPrurigoTeam Member

I don't think it was caused by the vaccine since I had some sores long before covid. I do think I picked up a virus in my late 20s that the covid caused my immune system to lose effect. I have a… read more

January 6

Has Anyone Else Gotten Eczema After Using Nemluvio? How Are You Treating The Eczema?

A MyPrurigoTeam Member asked a question 💭
Clarksville, TN

Although I had high hopes for Nemluvio, it didn't work for me. Unfortunately, after taking my starter dose and first regular dose of Nemluvio, I now have eczema spots on my body (and itching). I have stopped using the drug. Now, I am trying to figure out how to get rid of the dry eczema spots on my body. Has anyone else experienced this? If so, what are you using to treat your eczema?

A MyPrurigoTeam Member

I have been on both, not at the same time. Dupixent healed up my lesions & nodules, gave me muscle pain & weakness, and at the end after 13 months total, it crossed my asthma & COPD and closed my… read more

December 28, 2024

Has Anyone Been Diagnosed With Seborrheic Dermatitis On Their Scalp Besides The PN And LSC

A MyPrurigoTeam Member asked a question 💭
Tooele, UT
A MyPrurigoTeam Member

Thank you LuciBuchanan, but I decided to stick with the Neutrogena T-Sal as seriously that is the only one out of the hundreds, I have tried that agrees w/my diseased scalp! 🥰

7 days ago
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