It was my husband who said 6 months ago “what’s going on with your arms?” The PN was o. The backs of my arms so I didn’t notice the extent of the nodules. Dermatologists have been diagnosing my outbreaks as acne and give me creams and antibiotics which work for awhile and then it’s back. When my husband looked alarmed that day I immediately went to my internist who looked shocked as he seemed to think it was staph. I went to my Dermo who said it wasn’t staph, just dermatitis and here’s some steroid cream. Nothing happened with the cream and subsequently saw 4 other Dermo tilt users in a 6 month period, until one said it was PN and I should be in Dupixient right away. I wasn’t sure about it and am afraid if needles so I tried a few more steroid creams with no luck. My insurance approved Dupixient because of all the unsuccessful treatments I tried. I’m in my 2nd dose. The injection does hurt for a brief minute, but it’s well worth it if it helps this horrid condition. My husband is very supportive. I feel so unattractive, especially since it’s on my face now (with docs saying it’s acne but I know it’s PN). I wear long sleeves and pants and don’t want to wear a bathing suit in the summer. I wear soft pjs to bed now because I still use steroid cream as well and it’s like Vaseline and gets on everything. So while I feel gross, he’s been very living. He’s had his own medical issues so I guess he knows what it’s like to suffer from a disease that manifests itself so prominently.

At first my husband thought I was crazy because he would look and say “there’s nothing there stop scratching” but remember it starts off as an intense itch for about 6 weeks. My intense itch started last April. When through to the summer and in November I was diagnosed. Took 10 doctors later to find one that actually listened to me.

During my intense itch the bumps started to form. And I thought they were spider bites. By august my face was horrible.. scars and rash. There will be moments it disappears .. but then one moment I’m upset or aggravated or just pissed off and boom.. the eruption starts .
And at first we argued and no one gets it. He didn’t get it at first .. because he doesn’t know how it feels. It’s constant pain itch and stinging.. 24/7 … all day every day. we still argue from time to time cause he would forget when I have good days of no scratching or itch. There was nights I cry.. cry and cry and wonder wtf did it do. I friend hard and I care too much . And I feel like why do I have this.

I got this right after the vaccine shot. I posted an article I’ll share with you. But we argued for days and days and one day I woke up with a very bad eruption and I left to the emergency room because I was so scared. I left with out him on some “fuck this bullshit .. I’m out”
I’m a Puerto Rican from Brooklyn born and raised. So my attitude I was born with it.. it’s in my DNA .. to explain better you see the actress Rosie Perez.. yeah I’m little Rosie .. accent an all.. and my mom always told me don’t depend on no man. And when I left and then he shows up the doctor spoke to him in the other room. After that night he understood wtf was happening to me.
He has his own health issues as well. And it’s understandable when ppl just don’t get it until it happens to them
Or explained.
But best believe we argued .. and after he understood. He apologized and felt sorry he didn’t understand and it’s not a sorry next time be carful and understand when someone tell you it hurts and in pain listen.. and you know what I learned to
Listen too. And not argue back.

It’s a learning process for everyone even your significant other ..

And as for dating… if that person is judging you fuck them take care of you first and trust it will come to you and that person will understand and love you for you and not what your skin looks like

I went through that .. I know how it feels to be looked at and judged when they don’t know the beautiful person that is YOU

It makes me sad to think of single people feeling badly about themselves or dating.I suppose with or without PN it is imminent to feel good about who u are in the dating realm or otherwise.A decent person will want to be there for the good and not so good.If it is just s hook up,Ive never been great at that.Be comfortable is important.Everybody has something they struggle with.How they deal with it refets to their character.

I am recently single not dating. I'm self conscious about all my scars and lesions. Can't see anybody hanging out with me scratching (I try so hard not to!) much less wanting to have a relationship with me. I have some other health problems and PN added on has made me feel like a monster

Omgosh that’s one of the hardest things. Even tho my husband does his best and stands by my side, I can still feel extremely alone