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Anyone Have Advice On Or Experience With Rinvoq?

A MyPrurigoTeam Member asked a question 💭
Memphis, TN

My derm took me off Dupixent today and wants me to start Rinvoq. I took Dupixent for 5 months. Week 1 after my injection was great, and week 2 was horrific, and so it continued every two weeks. What can you guys tell me about Rinvoq? I took my last Dupixent shot 8/11. Should I wait to start Rinvoq, or can I start it now? Derm said start now, but I’m nervous.

August 14, 2023
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A MyPrurigoTeam Member

If you think dermatologists are odd wait tell you meet a rheumatologist. Your doctor is correct they come from a different angle. Did your doctor do an ana blood test or anything? It’s great when they do so the new doctor can can come out of the gate running. This doc will closely observe thing like your fingernails, the inside of your cheeks, palms of your hands and much more. It’s amazing how by observing they can come up with a game plan. I have mixed connectivity. It’s a unique auto immune disease that you just sit back and wait for what’s next. It is 3 different auto issues but you do not get the full effect of any of them.

August 19, 2023
A MyPrurigoTeam Member

I wanted to add to your story that my current allergy doctor suggested I also see a Rheumatologist as he thought theyt can help with PN. At first it didn't make sense to me, but now I am experiencing Contact Dermatitis and that also caused my PN to flare up. I think he said the Rhuematologist would approach treatment differently. I haven't been to the Rheumatologist yet.

August 15, 2023
A MyPrurigoTeam Member

I too believe the same as I have been prescribed drugs for Tourette Syndrome, and a drug for seizures, & the side effects were devastating......gave me body tremors, & affected by sense of balance bad! Dupixent did not work for me after a 16 week period of time, but affected my vision! So I go back tomorrow for a follow up from the 2 biopsies they took from my scalp which Derma (8th one), & he had diagnosed Seborrheic Keratosis just from looking at my scalp before biopsies. I was actually relieved as finally something could be done as I asked if they could be excised off, and he said yes. Then only to be let down after biopsy results that it is PN with Lichen Simplex Chronicus, & that there is no cure. After almost 14 yrs, I have realized that this horrific disease is understudied, and overlooked. My new fam doc suggested Pain Management &, I think I know how or how to try to deal & handle my pain for almost 14 years! Dead end for me unless clinical drug for this is approved by FDA which by then I won't have the pain, stinging, burning, excruciating itching, depression, anxiety, etc. as I will have kicked the bucket by then. Trying to be positive , but this disease totally affects your quality of life!!

August 14, 2023
A MyPrurigoTeam Member

I had read that but he wanted to keep me on Dupixent too.

October 7, 2023
A MyPrurigoTeam Member

Am I the only person on Adbry? I know that it helps my itching a lot, but it doesn't stop the breakouts I don't think. I've never heard of Rinvoq. If Adbry doesn't work after a while, I'll just go the holistic way by itself. I hate these injections. But possibly suggest to your Dr to try Adbry. It is an injectable like Dupixant but newer.

October 4, 2023

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