Ugly is wrong. You are not ugly. The sores are ugly. The no real treatment is ugly. But I know how you feel. I hide a lot in my home. And I was also too embarrassed to tell my doc about the sores there. I am immunilogically challenged--I have to be really careful what I put in my body. I just try to get through each day as best I can. Feel better.

So very true! It's easier to say it's a 'mind disorder '... I bet they would NOT like a piece of my disorder that's going round my mind when I hear that anymore...

I hope everyone is doing okay or good would be even better. I'm just touching base and tuning in so to speak. I have not been on the site for a while. I do think of you all and wonder how your own PN is developing and or improving.

It's so true the way you described the painful nerve feeling Mitch. The pain seems to trigger down to the leg if touched. I'm sure it's the same for everyone. Horrid for us all. My itch has gone thank goodness. I gave up the Hydroxyzine as I felt every time I used it I would develop a new spot. My Dr prescribed Betacap for the scalp. It really helped. Highly recommended. No new sores on scalp. The ones there are just dormant. However, I definitely have a skin picking disorder which magnifies everything and healing will take forever with this addiction. I feel embarrassed and ashamed that I do this, obviously in private. I'm not sure why it's difficult to stop. Bearing my soul here guys...

I developed lumps on my forehead and around the face. I will have scars from picking but a concealer stick sure helps and hides them to a degree. They are mainly just scars now but one under the chin is still a lump and sore. Its there for literally months. I literally hate these lumps especially at this stage of my and our lives in a lot of cases here on the team. I get very aggitated with them literally.

I made a complaint about the Dr in the hospital. They took it seriously but no outcome yet. I still have not had any biopsy done to confirm its definitely PN. My next appointment is not until December. Also, I'm not sure if it's from an underwire Bra but sore small lumps under breasts. I'm wondering if anyone has these lumps under the breast. I don't know if it's PN or not. I was to get a covid booster but I recently heard awful things regarding the ingredients and prior testing. I read also that it can cause skin problems and could also possibly cause PN.
A few people here said they felt they developed it after getting their covid injection. For me apart from the hair colour reaction when all this literally started, now covid booster doesn't seem to have helped either. Oops going on too long. Making up for lost time.

Best to all

the white strand is dense collagen that builds up on the nerve ending that is inflamed to protect it, it feels like it has a root, removing them is tough and can make it worse but it can also stop the progression when its gone andcaomes with a sense of relief, but at times just touch it or brushing it hurts, like touching a raw nerve ( which it is) it excites the itch there and wakes ups it neihbors surrounded it and can even wake up nodules on the corresonding spot on the corresponding other limb and may feel a sharp pain itch ( almost electrical feeling ) on that limb followed by accompanying itch and more itch in the area when we scratch it. it sucks.

For Jacinta: Any doc who calls it a skin picking disease is a judgmental jerk! Get a new doc!