Me too Carla they need to really research this disease because it is probably the most intense each I've ever experienced in my life. I've cried I've jumped up and down I went to hospitals big doctors to help me and it's like I could not get help nowhere

Doctors don't know, they won't even call it autoimmune. Sadly, you aren't going to get much help. My doctor has given me all kinds of salves, he is honest. It may help, may not. Sorry but we are on our own!

AMEN SISTA! Spot on!!! Whoa is us!!👍 P.S. I wrote a response to your comment about the drug specifically for PN!!🙏

It’s considered to be an autoimmune disease where there is an immune dysregulation between the immune system and the receptors present in our skin. I don't understand why this happens and believe that it's not as rare as everything you read says. I just think too many people are misdiagnosed. I am reading other people's background that goes back 20+ years and I don't understand why there is such little information on it with all of the advanced technology and resources present. Why is there not more definitive information on treatment? This diagnosis changes people's lives in an all-around negative way and has no advancement in care. Why isn't this taken to be a serious skin condition and have more information about it? I can read tons of articles on acne, hyper/hypopigmentation, wrinkles, broken capillaries, etc., and can't find too much information on PN. I am frustrated and truthfully having serious issues with the way I look and having others see me. Call me vain, but regardless I am extremely depressed and hate the lack of control I have with it.

I know my nerves are shot as my PCP prescribed antianxiety medication, a antidepressant medication, plus Medical Marijuana which does help somewhat for me to struggle through this horrific disease, & also being diagnosed with PTSD (War of Life) & OCD, I so agree that until anyone has it, they will never know how it affects your quality of life & as you know life is hard enough let alone dealing with this devasting PN & in my case also the Lichen Simplex Chronicus (LSC) of the scalp! I am close to decapitation for relief, JNK! Woe is us!! 😱