Tresea oh I so hear ya as I feel the same way as I wrote off the so-called skin specialists but got thinking with the new drug coming out specifically for PN that in order to be prescribed I would most likely have to see one for a prescription, UGH! I will do what I have to do as I don't know how much longer I can deal with this! I have my hopes up so high for this new drug coming out, and hopefully it will help us all! Being the pessimist I am though, my luck it probably won't work for me like everything else they have prescribed for me! I will just keep hoping and 🙏ing that it does! My PN w/LSC is spreading more on my scalp, & I am so frustrated & depressed. May we all get some much needed relief sooner than later! 👍

Hi I'm hanging in there. I've got to point to say" you mind if I stay here till I have another outbroke & maybe they can finally get a biopsy. I just can't run over there & say here I am. I just said the hell with them. I know I have a bad attitude but I'm tried of trying. 😒

If your dermatologist hasn’t biopsies it yet he should so that you have an answer to exactly what you have. I was actually relieved when I had an actual biopsy sent to a lab with a return diagnosis of PN. Armed with that you’ll get different or better meds from your doctor. I’m waiting for my next dr appointment and I’ll get some different, new meds to try. It sure is t easy, I scratch to raw flesh.

I hear ya, as I feel like screaming and crying a lot! It's so horrible! Positive vibes and 🙏🙏🙏 sent to all of us that suffer w/this devasting disease!