Thanks for the input. I think also depression is part of it too.

OMG, I thought it was just me & had often wondered if it affected anyone else this way as I know some can't get to sleep because of the itch-scratch cycle. I have been retired 20 years & worked 37 years having to work sometimes 4–10-hour days so had to be up early and stay later which was a challenge even though I was much younger. The first day off of the 3, I was like a Zombie to recover from that schedule. Being retired now I am a real night owl as I stay up until the bewitching hour of 3 a.m. & lately been dragging it out to 4 in the morn. I have to take an Ambien as I wear a CPAP Machine (which is a PITA) to finally quit worrying about everything (to shut down my mind) to be able to go to sleep & then when my lil' Malchi wakes up I let him out, & then go back to bed and could sleep sometimes into the early afternoon so I really do like it as when I am asleep as also my nerves must also be asleep. I know it sounds cray, cray, but I too feel it is one of the main factors of the dreaded PN and Lichen Simplex Chronicus. Also, a team member mentioned sometime back about not having much of an appetite & my answer was sometimes, but basically a lot of the food I eat will taste funny or not good at all! I truly believe that the PN & Lichen Simplex Chronicus contributes to the loss of appetite or food tasting funny or not good, & the sleep part contributes due to depression from it! Also, my energy is at the lowest to accomplish anything as I really have to push myself to accomplish the needed housework, etc., but contribute most of that to being a real fossil, & some of the old age ailments that go with it. Also, I was diagnosed w/PTSD and OCD, so it has been quite debilitating! IMO, I don't think the skin specialists or FDA realize how horrible that this rare disease can create all these other symptoms & problems! Sorry for the novel but dealing w/this for 15 years on my scalp has just about broken me down, mentally and physically! If the FDA approval time frame isn't until October 2026, I doubt I will be able to experience the much-needed relief as by then I might be taking a real dirt nap, or be in a mental ward, LOL! I know I literally try to make this out to try to be funny, but seriously the stress of it all is killing a lot of us day-by-day as we cannot find any relief whatsoever!😱

I have noticed that I'm more tired but I have other things going on so I'm not sure if it's from PN or something else. Maybe both. ?

I also have bipolar disorder. I spent almost a year in bed (depression) around 2012. On the positive side, I don't remember any PN or RLS, or anything else for that matter. Points to a psychological root to these conditions. I prefer the manic phase! My therapist at the time once said that people pay good money for drugs to feel like I do when manic, ie speed, etc. On the "down" side, I did buy a nice used BMW when manic without my wife's knowledge. She was very upset when she returned home from work to find a shiny orange X1 parked outside. We tried to take it back, but couldn't. Now almost 10 years later we have come to love the little SUV. Sometimes good things come out of "bad" decisions!

I would love to know how to fix it, too!