I am having very painful skin flare ups which look like eczema as well as my nodules. Does anyone else have experience of this please?
Diagnosed with chronic nodular prurigo (CNPG) in March 2024. Combination of Tacrolimus and Pregabalin have helped control the worst of the night time itching and sleep deprivation. My biggest problem currently is excruciatingly painful flare ups in patches - look like eczema but do not itch. Very sensitive to heat and not responsive to corticosteroids or immunotherapy creams.
Tina-Ambassador-I am just so sorry. I am completely overwhelmed at this point. I have Raynauds too. LSC does not itch for me, if that is even what it is. I feel like they only rule out, which isn’t confirmation. The biopsy said LSC and PN. I know burning hands must just put you nearly over the edge. I guess we just have to keep hope, but tonight I just want it to leave me alone. 🥹🤪🥹
LSC can cause that. Lichen Simplex Chronicus. I have both PN and LSC as I have noticed many people on here do. It seems the sky’s the limit with these conditions.
Hi Tina - thank you so much for your response. Sounds very similar to me - really over sensitive to heat but that’s what I do to “reset” the pain and discomfort - I find bathing my whole hands in. Cold water in a wash basin for 3 to 5 minutes really helps reduce the pain. The only complication is that I have Raynauds which affects my hands and is a bit painful - a lot less so than the pain from the eczema like blisters ! I will see if I can find the ointment you suggest - I’m in England but we can usually get USA products from Amazon . Thank you so much for reaching out to me. I have only recently been diagnosed and it is a relief to at least know what is going on
How many of you use eczema wraps and the like for relief?
I have been on dupixent 3 months and don't know what to expect but see a pattern. After the treatment I am really sick for about 3 days,
Even when things are quiet, I seem to have this general background itch that's noticeable from time to time. Anyone else?