Elle,what I found in regards to contacting the FDA is 1-888463-6332(1-888-INFO-FDA(phone). Email:
www.fda/industry/industry/fda-basics-industry/ submit questions . Hope it helps.

Thanks Cathy! We should all make contact and see what more we can find out as far as research and commonalities surveys in the works or otherwise. We need to be sounding boards for ourselves. We deserve answers!

Interesting about the celiac. Yes a research study and survey would be very helpful! Who is doing research does anyone know?

I agree so much! I was just reading about celiac disease, all the same symptoms as pn! But I am to take all these medications? My doctor hasn't recommended any other tests. We need a survey! I am calling my family doctor tomorrow because I am getting so much worse,joints,fatigue. My family doctor already suggested a psychiatrist for meds to calm nerves. Who is doing research?

I will be emailing