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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Everyone Know That The Makers Of Nemluvio WANT You To Have Access To It? I Am Taking It At No Cost For Two Years! Call Your Doctor!

A MyPrurigoTeam Member asked a question 💭
Saint Louis, MO

I want to encourage everyone to tell your doctor that you want to try Nemluvio. My insurance won’t cover it because it is so new but they want it made available to PN sufferers
It is insanely expensive — more than $8600 where I get prescriptions. BUT, they did the paperwork at my doctor’s office and I am going to be able to take it for two years at NO charge
It is a monthly injection. I did my second one today. They send it in the mail.
My skin is not clear but it’s better!
Call… read more

November 13, 2024
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A MyPrurigoTeam Member

The price is unbelievable! I hope that you are able to get in the program.

November 14, 2024
A MyPrurigoTeam Member

Yes, if your doctor approves it there is the Patient Assistance Program w/Galdema, then if the necessary paperwork is filled out by your doctor & yourself then most likely you will receive it at the no cost. I do my second injection this Friday and hoping I will see more improvement w/it as time goes on. It is worth a try to see if will give you some much-needed relief from this dreadful disease.

November 13, 2024
A MyPrurigoTeam Member

Thanks for sharing just got go for it I have tried everything

November 15, 2024
A MyPrurigoTeam Member

Richard2
Hello
I'm Mary Lou in Toronto 🍁
Yes this nasty PN is a trial & error process unfortunately Like whack a mole game the doctors try 2 hit the nodules etc with one medication- cream pills or injections but unfortunately nothing really seems to really help according 2 almost everyone in this wonderful support group as we R all dealing with & experiencing its awful itching painful embarrassing rare horrible terrible on- going never ending symtoms
Its definitely a mysterious mystery disease for sure that definitely needs more research into 2 even find out what actually causes it in the first place & eventually hopefully a miracle prescription that works 4 all of us & any future patients
Take care
Bye 4 now

November 17, 2024
MyPrurigoTeam

Nemluvio (nemolizumab-ilto) is a biologic drug approved by the U.S. Food and Drug Administration (FDA) for the treatment of adults with prurigo nodularis, a chronic skin condition characterized by intensely itchy nodules. Here are some key points about Nemluvio:

- Mechanism: It works by blocking the activity of IL-31, a Show Full Answer

Nemluvio (nemolizumab-ilto) is a biologic drug approved by the U.S. Food and Drug Administration (FDA) for the treatment of adults with prurigo nodularis, a chronic skin condition characterized by intensely itchy nodules. Here are some key points about Nemluvio:

- Mechanism: It works by blocking the activity of IL-31, a protein in the immune system that plays a key role in the development of itching and inflammation in prurigo nodularis.
- Administration: Nemluvio is administered by subcutaneous injection using a single-dose, prefilled dual-chamber pen. Dosing sizes depend on a person’s weight, with a new dose given every four weeks.
- Side Effects: Common side effects include headache, atopic dermatitis, eczema, and eczema nummular. Rare but serious side effects may include hypersensitivity reactions.
- Cost and Access: While the cost can be high, some patients may have access to programs that provide the medication at no charge for a certain period.

For more detailed information, you can visit the Nemluvio page on MyPrurigoTeam. Always consult with your healthcare provider to discuss treatment options and access programs.

November 13, 2024

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