How very disruptive it is to everyday life. Until it's been experienced, it's difficult to imagine how a skin condition can change life so completely.

The scars it leaves.

I totally agree with @A MyPrurigoTeam Member. N addition to her comments, I think we need to talk about how we can get others to understand how PN affects our life. I have had a hard time getting my friends and family to understand PN and why some days I am fine and others I am not. I have tried pamphlets and videos. I think a lot of them believe I am just making excuses to get out of doing things. I try to explain it but they think once I am better, it is all over and I should be fine…like getting over a cold.

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A MyPruri...

My personal hate is the constant reference ( by dermatologists) to the itch scratch cycle. I would love to see them try to avoid scratching these spots!
I have had very itchy skin for nearly 30 years, and have been scratching for that length of time. So, how is it that I have only developed NP eighteen months ago? That’s a hell of a lengthy itch scratch cycle.

I can copy and paste what U just wrote Tina ! No one understands. Everytime I come to my dermatologist and her team of nurses at least one of them cracks: "Oh isn´t it wonderful Maria now the spring and the warmth is coming. Tomorrow is going to be even warmer. Are U going to the beach Maria ?" It´s not once, it´s a comment every time about something they should know is a nightmare for a PN-patient. I cry everytime I come back from my dermatologist at the University hospital. They should know better for God sake. They are responsible for the education of new dermatologists and derma-nurses.