What’s One Thing About Prurigo Nodularis That People Rarely Discuss But Should?
How very disruptive it is to everyday life. Until it's been experienced, it's difficult to imagine how a skin condition can change life so completely.
The scars it leaves.
I totally agree with @A MyPrurigoTeam Member. N addition to her comments, I think we need to talk about how we can get others to understand how PN affects our life. I have had a hard time getting my friends and family to understand PN and why some days I am fine and others I am not. I have tried pamphlets and videos. I think a lot of them believe I am just making excuses to get out of doing things. I try to explain it but they think once I am better, it is all over and I should be fine…like getting over a cold.
My personal hate is the constant reference ( by dermatologists) to the itch scratch cycle. I would love to see them try to avoid scratching these spots!
I have had very itchy skin for nearly 30 years, and have been scratching for that length of time. So, how is it that I have only developed NP eighteen months ago? That’s a hell of a lengthy itch scratch cycle.
So sorry to hear that, Maria. It seems to be a scantily thought about skin complaint, with very few people having the knowledge to diagnose it. We are a forgotten tribe!
I Am Still Concerned. Anyone Else Who Have A Biopsy Report, Nonspecific? I Have Had Two. I Asked What That Meant. I Got No Answer!
My Dr Is Switching Me From Dupixent To Rinvoq. Does Anyone Have Experience With Rinvoq?
Sign up for free!