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Has Anyone Been Diagnosed With Seborrheic Dermatitis On Their Scalp Besides The PN And LSC

A MyPrurigoTeam Member asked a question 💭
Tooele, UT
December 7
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A MyPrurigoTeam Member

Sure do! Strange happening too. I saw the dermatologist twice and then was shuffled off to the nurse practioner. Not happy about this and she is pushing me to start dupixent. I said OK but the price? I was told they were working on getting it lowered but the nurse practioner goes out, comes back with a shot, gives it to me. Then I am given a schedule to come in the office for the next 3. I said again I don't know what the price will be. Whoever I was talking to, I think the nurse said oh we have some here. I think samples? Meantime I am not happy with this nurse, I am not going back,find another doctor. But my drug statement for November came. I owe drugmart $1,400+ for 4 shots of dupixent! I called the pharmacy I use that posts this and told them I never had 4 shots, never went to drugmart, hadn't discussed price with any one yet. I have left a message with the doctor's office but nothing yet. I wasn't told either the full-fledged dermatologist is only in the office one day a week. I saw him twice only for about two minutes. A biopsy done which came back nonspecific but I have pn? Whoa! I know this is a lot but what do you all think? I don't like the nurse practioner. How dare I ask questions attitude! We need to unionize!

December 11
A MyPrurigoTeam Member

Ditto to you Georgia. You can do this girl! I know you can. You are not alone😊

December 10
A MyPrurigoTeam Member

I completely understand, Carla. I just put a few drops of teatree oil in with the conditioner. It is strong. I know what you mean about the doctors. They have no clue. I changed pcp, she glanced at the rash, said it isn't shingles and went on about all the tests I am supposed to have, some I guess to eliminate possibilities. Bone scan, CT scan, blood doctor whatever they are called all in one day. If the pain from the sores doesn't let up, there's no way. I will be 82 end of the month. I give anything for the old days when they put you in the hospital for tests. Now you have to get there, get around and get home while in such pain. Insurance companies. I don't seem to be having much scalp trouble, question the pn diagnosis since I only get sores on one side. The dermatologist I had I saw twice for about 2 minutes, then sent off to a nurse practioner. My biopsies came back nonspecific which means I don't know but they immediately wanted to start dupixent. No tests for anything else. We sure are guinea pigs. Go on and be a downer, with this we are earning it. Sound off anytime. The holidays coming and I can do nothing. The sores under the left arm are so painful. I quit!

December 8
A MyPrurigoTeam Member

I use a product called "As I Am." They have an olive & tea tree oil dandruff cowash specifically formulated to treat seborrheic dermatitis. I use it once a week. At first, I used the tea tree oil cowash along with a medicated shampoo (Ketoconazole 2%), but I didn't get much relief from the medicated shampoo. Plus, the medicated shampoo made my hair super dry. Since the tea tree oil took care of the itch entirely, I stopped using the medicated shampoo. I haven't had any problem with itch since I started using the tea trea oil cowash.

December 8
A MyPrurigoTeam Member

Actually, Georgia out of all the types of products I have used, I think I had used the Tea Tree Oil in the past and it seemed to irritate my skin more so the only type of medicated shampoo I have been using is the Neutrogena T-Sal. I am willing to try anything again at this point, and was just hoping the Nemluvio would start giving me some relief. I take my 3rd shot on the 15th of Dec, & still hoping for some much-needed relief. I tried to explain to her that until someone has the PN and LSC they will never know how horrendous it can be. I feel like I am at a dead end plus she wants me to have another allergy testing done and select a therapist as I explained to her that stress really sets it off. I mean I guess these so-called skin specialists will never fully understand us. I mean my PCP has me on an antidepressant, and an antianxiety which IMO should be helping my diagnosis of depression, anxiety, OCD, and PTSD. I am a 76-yr old fossil and feel like I will never have any relief whatsoever. I am a Type A Personality, & my dad nicknamed my mom "Worry Wart" so I guess that says it all! Sorry to be such a Debbie Downer, but I am now at my wit's end, UGH, and UGH!

December 7 (edited)

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