Amen Deborah as I too feel like if I hadn't had found this support group, I would have just felt cursed as a medical mystery besides being labeled that it is all in my head (which it truly is, my scalp owie)! To be told too it's the "Picker's Disease" is such BS, but it has truly made me insane & inflamed in the membrane with the constant itch scratch cycle, pain, burning, stinging, with lesions & scabs that never heal! Grrrrrrrr!😱

Tina-Ambassador you made me laugh at “family, they are a different type of disease.”

I thank God for this support group! At last, someone understands what it feels like to constantly itch !

Yes I do! I can't make connection with anybody. I have been single for 10 years now. 4 with PN

Well, I get nervous just thinking about other people around me any more. Went to a restaurant and we ate there, first time in over a year...
That is actually a question I have been pondering a lot lately also... Not really sure I want to be around people, not even family, they are a different kind of disease!