Has Anyone Ever Applied For Disability Due To Purigio Nodularis???
I feel his pain. I don’t know if anyone who has collected disability for this nightmare since there are meds to help the itch.
However, since this is a condition that is lifelong, with his docs help, he may have a chance. Best of luck.
Was coming to ask this very same question… this disease is physically and mentally devastating for my husband- up all night scratching and finally gets some reprieve around sunrise and then sleeps a few or so hours. He can’t work and barely goes anywhere in public because he doesn’t want anyone to see him and start rumors about what they think he has… my heart breaks for him and anyone that has to deal with this disease. Much love to you all.
I've wondered the same thing and many times have thought it definitely should be a condition that is recognized!!
@A MyPrurigoTeam Member you are not alone! I am sure you are tired of people saying 'have you tried' (I am) benedryl, bleach bath or spray on, and crazy itch- liquid bandage with sprinkled on clove powder. That has been my crazy itch live sane this past month. Weather broke cooler and is currently giving me a break after being stuck inside for a couple weeks.
I still haven't found a medication or cream or lotion or topical to help!! I'm on Dupixent and have been since August of 2023, I'm no better, in fact I think I'm worse! I ask myself every day, why in the hell am I still here? I can't live my life like this much longer, it is killing me.
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