anyone else tired of all the drug pushing? There are so many side effects on all

I would like to try it, but everything I have been prescribed or home remedies, NOTHING helps or gives me any relief whatsoever! Sometimes these just make it worse!! UGH! Just not patiently waiting for the drug to be approved by the FDA.......Nemolizumab specifically to treat PN! Come on FDA as we all need some much-needed relief!!😱

Funny, I did try Frankincense and castor oil. Castor oil feels nice and I have used it for awhile, but frankincense which I also put on my face gave me a new rash. I have such a fear of PN moving from my scalp to my face, that I didn’t give frankincense a second try.

Oh, I hear ya Deb as other team members may have luck with their great recommendations but in my case, nuttin' really helps or just creates more havoc for example the Gotucream and ur hair root spray, as the Gotucream really GOT me, UGH!! My fear too, it spreading to my face! The scalp makes it much more complicated as your hair wants to grow, but it becomes a hot mess w/some bald spots! I so feel sorry for us all w/this cruel rare disease! Makes me wonder how many years it took for other treatments such as for the big "C" is what my dad called it as it CANCELS you out usually, probably centuries & still no real relief or cure which is so very sad. It seriously did cancel out both my mom and dad within 4 mos. of one another which I am truly a prime candidate, but try not to fret and worry, just try to be happy when scratching as that way you know you are still kicking (my BAD)!😱

yikes. I have never heard of PN spreading to the face. Im so sorry.