Thank you Tina. Being " blindsided" is the perfect way to put it mildly! I listened to a podcast last nite about skin issues & her conclusion was any & all skin problems are from having a leaky gut. I'll finish listening to it today sometime. From what I've heard so far it kind of make sense. I'm very grateful for this platform so we can encourage one another & can share ideas. I appreciate you reaching out to me! Thank you so much!! ❤️

We all got blind-sided, at least from all I have heard of. Being a rare disease, most of us with no previous real inclination of skin issues, then, BAM! There we are, me, I was itching like I had fleas! Learning of the different things that may happen, things that may help, and treatments that you may or may not wish to try or do. It's not straight forward like getting an antibiotic.
There is a lot of information under the Resources tab, and so much information from all of the folks on here, as you are seeing. I'm glad you're here with us! 🫂

You are welcome !! Tina is right we are all here together.

Thank you Tina & Annmarie for letting me know what has & has not worked for y'all. My itch, as of today, isn't as bad as it has been for 6 weeks now. I'm thankful for some relief. I have a lot of things wrong with my body but I can honestly say this one is the worst!!
Let's keep in touch. Melva

Hello
I have had the kenlog injections and to me it did not help
I had him shoot me right in the mouth and the leg and nothing
Just putting steroids in your body .
But that being said , that is me
It may work for you . You have to try all different things to see what it’s best for you .
It’s hard and it’s a long process but hopefully you will find your best treatment