Hi, just wanted to add, Cool water therapy really works! Rinsing with as cool as you find comfortable..In the summer, I do stay in whenever the humidity is high..But sunny days are good for you! Managing this disorder means managing how we feel about having this disorder..Positive outlets are so important! Like, sharing on platforms like this one..It helps all of us!

Hey guys been reading your Q & A always good to listen to the answers. Ice will help with neuropathy, and inflammation . 20 minutes on, 20 minutes off. My Doc told me no going out in natural sun or tanning beds. I have to wear long sleeves, long pants plus I spend alot of time taking cool showers to bring my skin temp. down. There are many layers to this disease & when the nerves are involved it gets harsh trying to figure out the best way to handle the daily pain,meds & often tears. Hope we can all put aside a little time to appreciate seeing another New Year, so HAPPY NEW YEAR to one & all!!! ☆☆☆☆

Every one of my eruptions or flare ups are very different from each other … usually in the same places or spots but some would be more itchy .. intense … other times the pain would be more than others … it’s a Damm if u do or dammed if you don’t type of thing …. Some would be so red and hot! Very hot … and ears get so so red … for me it’s not stages … just different levels of intentness.
I hope you are ok today . 💜

Hi Lori, yes when I get reavup & nervous about something mine fares up more

I wonder if ice treatments help