Hello Carla Dixon I got diagnosed with LSC and know very little about it if you could share any info with me I’d appreciate it! Thanks Diane 🤷🏼‍♀️

CBD OIL IS FANTASTIC FOR MULTIPLE THINGS!
I have been on it for about 3 years, reduced pain, more energy, but only buy from one company, my daughter has watched this gentleman who had leukemia & other health problems regain his health. She has also been to the factory & knows how the oil is processed.
I put off taking the oil for much too long, but definitely don’t go without it now. Use to have injections in back, no more now❤️
I also found a fantastic/well educated, passionate for healing this condition DERMATOLOGIST,
In Independence, Mo, the first dermatologist to actually look at ALL lesions. Froze those on left side of body, injected steroids on right side of body to see which worked the best.
It’s been about 2-3 weeks & I have been pain/itch free since that appointment. Have been on Dupexent for eosinophilic asthma & PN every other week & he increased that to weekly.
I can now shower without pain, wear a bra again & on & on, I’m now living instead of existing 🙏🙏🙏❤️❤️❤️

Hi Carla!! Thanks for all the info! I have never been told I have PN my biopsies came back LSC my scalp has a lot of inflammation and itchy I actually cut my hair pretty short bc I couldn’t stand it with the heat I will look into this more thanks for your help ♥️🙏🏻

Diane4, I did a lot of research on this & my PN being on my scalp I feel like "Crusty the Clown"! It is the repetitive itch-scratch cycle that damages the epidermis & causing a crust (sugar-like grains) over my PN. This LSC is really thick & difficult to loosen up to where I have used tweezers to remove it! It feels like someone has pounded nails into my scalp! Basically, lichenified skin! In turn causes the damage &/or injury of the skin to produce more cells to protect it like a scab does, but never heals, & itches like a biotch to remove it as it creates pain and pressure by encasing the PN! After, there is some relief from it, but then sore, stinging & burning pain from PN lesion being uncovered, and wala it starts all over again! It creates damage to the nerve endings, & then "The Never-ending Story" continues! My PCP first diagnosed me with Neurodermatitis, & I mentioned the LSC which he ended up telling me he heard that is horrible! I can attest to this! Nothing gives me relief except my antianxiety meds that I am allowed 2 a day, antidepressant meds only somewhat, & then when I am at my wits end I get the frozen bag of peas & hold or balance on my head for like 20 minutes which calms it down! Also, I have a Medicinal MJ Card which I take edibles as I do not inhale like Clinton said, & it helps zone me out somewhat! Nothing else has worked whatsoever, & the only shampoo I can use is the Neutrogena w/Salicylic Acid. I hope my novel helped you somewhat as I could go on and on as Decapitation might be my next step as I am anxiously waiting for the new drug, Nemolizumab which is specifically for PN to see if I can find some much-needed relief as most of this group's members so are in need of!😱

Ali, OMG, how horrible! I dislike asking the dreaded question, but how old are you? Also, how old were you when you got your first diagnosis of the Shingles (aka Roof Disease)? I don't know if you had read that I was diagnosed w/the very early stages of Shingles at 60 yrs old, & after being given the ineffective vaccine, almost 1 month from that date I started out w/the most horrible like mosquito bite on my scalp? So back to Derma & he barely looked at it and blurted out Eczema, LOL!! Then after the spread of the so-called Eczema & no relief whatsoever, & the 7 Demas after him, and 1 Allergist & their guesses & treatments later, 4 biopsies, just found out the beginning of 2023 that it was PN and LSC! Why I really asked is that my son who will be 50 in July, has had a bout of Shingles 6 times w/the first one when he was in early 40's. He tried and tried to get the vaccine early, but they told him he had to be 50, WTH? Every time they are located on the upper left back by his shoulder blade. Well, I told him he should be immune to them by now, hoping, and hoping but just had his 6th bout the beginning of this year, UGH! None of the so-called specialists I went to would connect my dreaded Eczema (LOL) w/the Shingles, hmmm! So basically who knows our bodies better, but ourselves, & after tons of research fully believe my PN and LSC was caused by the ineffective vaccine I had at 60. Makes so much sense to me as learning that this is caused from our immunological and neurological systems becoming out of sync (whacked)! So, when Shingrix, the new vaccine came out I decided to go get that vaccine thinking somehow it would calm down what I had, but no luck. I did have Chicken Pox twice when I was a youngster! My son got his when he was 14, and that case of Chicken Pox made him sickest I had ever seen him be when growing up! So if I am understanding you right, you were diagnosed with PN, and then started w/the bouts of Shingles! WOW, just WOW if that is the case! This rare, dreaded disease can be such a mystery!👀😢