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Real members of MyPrurigoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Else Gotten Eczema After Using Nemluvio? How Are You Treating The Eczema?

A MyPrurigoTeam Member asked a question 💭
Clarksville, TN

Although I had high hopes for Nemluvio, it didn't work for me. Unfortunately, after taking my starter dose and first regular dose of Nemluvio, I now have eczema spots on my body (and itching). I have stopped using the drug. Now, I am trying to figure out how to get rid of the dry eczema spots on my body. Has anyone else experienced this? If so, what are you using to treat your eczema?

December 8
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A MyPrurigoTeam Member

I know they say to stop scratching/picking, but i don't scatch until that pink bump pops up, so my questions is whyvthe bump appears in the first place. Something is causing that. Dr's. Think we do this to ourselves and I beg to differ. Something underlying is going on and they just can't figure it out.

December 11
A MyPrurigoTeam Member

Eczema is a known side effect of Nemluvio (nemolizumab-ilto). To manage eczema, topical treatments like corticosteroids, calcineurin inhibitors (e.g., tacrolimus or pimecrolimus), or vitamin D analogs may help reduce inflammation and itching. Moisturizers can also soothe dry spots. It's essential to consult your doctor for Show Full Answer

Eczema is a known side effect of Nemluvio (nemolizumab-ilto). To manage eczema, topical treatments like corticosteroids, calcineurin inhibitors (e.g., tacrolimus or pimecrolimus), or vitamin D analogs may help reduce inflammation and itching. Moisturizers can also soothe dry spots. It's essential to consult your doctor for personalized advice. For more on Nemluvio, visit: [Nemluvio (Nemolizumab-Ilto) for Prurigo Nodularis](https://www.MyPrurigoTeam.com/treatments/nemluvio).

December 8
A MyPrurigoTeam Member

@A MyPrurigoTeam Member That is how most of us heard of PN, thru long routes, many Drs & tests, as well as a lot of shame like we did something to do this. It just is. There is not a proof positive of why or how, but here it is. Most of us have similar backgrounds in health, spine/nerve issues, cancer, and other different issues.
This is the place where we are not alone, and where many of us have learned more about PN, what to do or try, what not to do. Not everyone is the same.
The Resources tab has a lot of information, and all of us here are world wide, and share what has helped and what has not.
I'm glad you're here with us! 🫂

December 8
A MyPrurigoTeam Member

My dermatologist told me there's nothing they can due for my condition and sent me off. So I have been using creams, sleeves, and trying to control this myself.

6 days ago
A MyPrurigoTeam Member

Oh no!!! My blue cross won't cover nemluvio. I'm a teacher. Upset

December 14

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