Has Anyone Found A Specialist Yet That Will Treat You W/Nemluvio?
The 2 in my area just treat you with Dupixent! One of the two indicated their Derma is very educated on PN and LSC, however, he does not treat with Nemluvio. Hmmm makes no sense to me as Dupixent did not help me whatsoever so I am hoping the specialist I have an appt w/in Salt Lake City, UT will be able to treat me w/Nemluvio! I swear our area is so behind the times! I know it requires prior authorization & hopefully she will be able to help me! I so hope the rest of the sufferers w/this… read more
How Fast Did Dupixent Work For You?
I've been on Dupixent 8 months this time and was on for a year before. It takes its time with me but I can see results little by little. I quit after the first year because I didn't think it was… read more
Has Anyone Ever Used Gotucream
A Maine coon who is protecting it's 'person' would kick its butt! Maine coons are not just big cats, they are different.
Has Anyone Been Prescribed The New Treatment Nemolizumab? If So How Is It Working?
Hi Lori. I was given the first two Nemolizumab injections on 10/1/24, two weeks ago. Dupixent had helped me a lot but would lose effectiveness a few days before each injection and my insurance would… read more
No Question But An Awesome Answer......NEMO Found Now Approved (as Per Tina)!
Carla, feel free to email me at any time! You know, I'm thinking that it may be a good idea to do that survey. My thoughts being you are not the only person who experienced this unacceptable level of… read more
I Was Just Told It's Going To Cost $1,100 A Month For Dupixent.
Wow, is that the going rate? Can I do better? Is it worth it?
Thank you because there's no way! I am going to call the doctor tomorrow and tell them. They should have said something when I agreed to try it!
Have Any Of You Had Sores That Ooze Yello? Misery And I Am Too Sick To Go To A Doctor.
GeorgiaFowles
Hello once again from Toronto
How does the gabopentin work?- I've read on this group some others use it as well 4 pain management
Does it help with the itching as well as it seems 2… read more
I Am Now Hypersensitive To Anything Floating In The Air If It Lands On My Skin. I Also Can Feel Web-like Strands On The Surface Of The Skin
I can't get it out of my head that the wound are communicating this way. I should know better than to think that!
RIGHT?
Hi Stacy! I have read that people with pn often have thinner skin. Maybe why you are more sensitive. Such a weird illness, so many strange sensations.
Has Anyone Tried The Dupixent Injection With The Pen On The Inner Thigh?
I agree and will let both dermatologist and rheumatologist know of pain. 😊
Has Anyone Been Given Gabapentin? I Take Xanax Too And Am A Zombie.
I am wondering if it's worth it. I can't do anything!
Gabapentin is the only pill I've found that at least takes the edge off. I think it's safe to say it actually seems to help.