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Has Anyone Found A Specialist Yet That Will Treat You W/Nemluvio?
The 2 in my area just treat you with Dupixent! One of the two indicated their Derma is very educated on PN and LSC, however, he does not treat with Nemluvio. Hmmm makes no sense to me as Dupixent did not help me whatsoever so I am hoping the specialist I have an appt w/in Salt Lake City, UT will be able to treat me w/Nemluvio! I swear our area is so behind the times! I know it requires prior authorization & hopefully she will be able to help me! I so hope the rest of the sufferers w/this… read more
I can't be on dupixent anymore. But I qualify for state medicaid as Medicare is first and medicaid is secondary. Whatever it doesn't matter because I'm scared to be on it. I had a GI bleed. Had to… read more
How Fast Did Dupixent Work For You?
I've been on Dupixent 8 months this time and was on for a year before. It takes its time with me but I can see results little by little. I quit after the first year because I didn't think it was… read more
Has Nemolizumab (Nemluvio) Helped Anyone?
The flu, nor the Covid mRNA is a live vaccine. I want to put this correct information out here for anyone reading this and has been told they are live, neither is live. I’ve been instructed, heavily… read more
Has Anyone Else Started The New Nemuvlio? It Was Just Approved By The FDA In August 2024. I've Just Gotten My First Month Dosage.
Yeay Cindy!!! I am so happy for you!
Hi Been Busy Not Feeling Well. Back Problems Teeth Also Tingly Hands . Do You Have Any Of These Things ? Also Welcome To New People.
Hi Tina. Can you take the Nemluvio and Dupixent at the same time?
Does Everyone Know That The Makers Of Nemluvio WANT You To Have Access To It? I Am Taking It At No Cost For Two Years! Call Your Doctor!
I want to encourage everyone to tell your doctor that you want to try Nemluvio. My insurance won’t cover it because it is so new but they want it made available to PN sufferers
It is insanely expensive — more than $8600 where I get prescriptions. BUT, they did the paperwork at my doctor’s office and I am going to be able to take it for two years at NO charge
It is a monthly injection. I did my second one today. They send it in the mail.
My skin is not clear but it’s better!
Call… read more
Richard2
Hello
I'm Mary Lou in Toronto 🍁
Yes this nasty PN is a trial & error process unfortunately Like whack a mole game the doctors try 2 hit the nodules etc with one medication- cream pills or… read more
Has Anyone Experience With The New Treatment That Is A Shot A Month? After 3-yrs Of Misdiagnosis, We Are Afraid To Have Hope!!
Hi Missy ~ The zinging is like touching a battery kind of feeling. That electric feeling going not in a pattern, but spidering out like a spider web each time it 'zings'.
Has Anyone Ever Used Gotucream
A Maine coon who is protecting it's 'person' would kick its butt! Maine coons are not just big cats, they are different.
I Was Just Told It's Going To Cost $1,100 A Month For Dupixent.
Wow, is that the going rate? Can I do better? Is it worth it?
Dupixent also did not help me, but it has others.
Has Anyone Been Prescribed The New Treatment Nemolizumab? If So How Is It Working?
Hi Lori. I was given the first two Nemolizumab injections on 10/1/24, two weeks ago. Dupixent had helped me a lot but would lose effectiveness a few days before each injection and my insurance would… read more
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